Saturday, June 26, 2010

Values and Vision of Friends Along the Road

Free to copy print & distribute. Not for commercial use. Changes prohibited. ©2007 Friends Along the Road Inc.

ON GRIEVING

1. Each person's experience of grief is unique and precious.

2. Grief may be of any intensity, and may last for any amount of time.

3. It is okay to display strong emotion, or none at all.

4. It is okay to refuse the sentiments of others.

5. Some in grief may seek comfort in religion and spirituality. Some may seek comfort in non-religious contexts. Others may not wish to be comforted at a given time.

6. Making a person as emotionally safe and physically comfortable as possible is sometimes the best way to help.

7. It is okay for those in grief to seek healing or resolution, or to not.

8. Family and friends may feel sad that their loved one is grieving. Such secondary grief is real and painful but the primary griever cannot be expected to understand this or have to deal with it.

9. Healing, resolution, and the achievement of positive frames of reference may be possible for those in grief. Caring support can help. 




F.A.R.S.I.G.N.
FRIENDS ALONG THE ROAD SANCTUARY
FOR THOSE IN GRIEF NETWORK

* A FAR sanctuary is a place of refuge and caring.

* Offering sanctuary is an act of compassion, not an obligation.

* Sanctuary may benefit those providing it as well as those receiving it. We grow through love.

* Sanctuary can last for a minute, or it can last forever. It's the quality of sanctuary, not its duration or place, that defines it.

* Caring emotional support includes trying not to judge what another person should be feeling, or for how long.

* Giving food, extending shelter, or other resources in a sanctuary is neither required nor discouraged.

* By creating any sanctuary, no matter how modest, we help to create a society having the qualities we demonstrate.

* By making connections and referrals to other sanctuaries, we are able to extend refuge and caring farther on down the road.

Thursday, June 17, 2010

What to Say - and Not to Say - to Those in Grief [Regular Version]

Note: This is a version of my post, "What to Say to Those in Grief [Extended Version]." -Dave


It can be terribly difficult - scary, even - to know what to say to those in grief, because this requires taking a serious look at death. Sometimes, words simply won't come. Silence is not an ideal approach to comforting someone in grief, but it is an improvement over catchwords that might be uttered more for one's own convenience than for truly expressing sympathy.

Yet there is help: there are things you can say to those in grief that might be comforting, and things to avoid.

Knowing what to say to those in grief may not help them feel better. However, your words and actions just might make a positive difference. Saying the right things might help you feel better, too.

Certain words and phrases should be avoided when expressing sympathy for those in grief.

Do not say anything that implies limits on the duration or intensity of grief. Grief is its own phenomenon, unique for each experiencer: it is messy, it happens in its own time and space, it can be mild as two weeks of sadness or as intense as an eternity of suffering. Grief can last for a lifetime, and that is okay. For who can speak for another's loss and say just how it should be experienced?

Avoid catch phrases such as, "Time heals all." First of all, such phrases sound contrived. Second, they are often untrue: for example, time does not necessarily heal grief. The bereaved have every right to grieve as long as necessary without having the trip laid on them of "getting over it."

Never say to the bereaved, "I know how you feel." You may think you know how they feel, because you too may have lost a beloved family member or friend, but actually, that was your experience of grief, not theirs. Each person grieves in his or her own way. Don't make the conversation about yourself; keep it focused on their loss, not yours.

I have heard people say to those in deep grief that the death of a loved one "...is God's will." Just about nothing can upset a person in grief more than these words. When we lose those most precious to us, we may wonder why God could possibly allow their deaths. The idea that God would "take" someone to satisfy a whim is abominable. Whether or not you and/or the bereaved individual are religious, leave the topic of God out of expression of sympathy, unless the bereaved person brings it up; and if that is the case, you are on your own.

"You are doing so well" is another phrase to avoid. Do you live in that person's head or heart? For all you know he or she may look okay but be contemplating suicide. Do not add expectations of "doing well" to those already so burdened with the loss of their loved ones that they may be feeling like death themselves. Don't push your expectations on them; simply allow them their grief.

Do not say, "Be brave" or "Be strong." Who cares about bravery when faced with such essential questions as, "my child is dead. Should I live or die?"

You might find yourself saying, "Others have lived through it and so can you." This statement is possibly dangerous: someone who has just lost his or her beloved child, brother or sister, mother or father, grandparent, or best friend might feel so close to death already that he or she is pushed over the edge by being told they can "get through it." Hopefully a choice of life will be the answer - but this is something with which someone must personally come to terms.

Avoid talking about "Stages of Grieving."  Elizabeth Kubler-Ross never meant for her "stages" theory to be taken as literally as it has in regard to bereavement, later writing that grief happens in its own time and fashion, and cannot always be neatly resolved. There are some great insights in Kubler-Ross' work, but it just isn't appropriate to saddle someone with the expectation that grief occurs in pre-defined stages, with an ultimate outcome of acceptance.

"Grieving is a process" also sounds absurdly cold and mechanical, and leaves no room for unexpected, spontaneous experiences of grief that do not conform to any preset theory, and may be surprisingly essential, somehow, in learning to live with one's grief.

Be assurred, though: you can offer effective comfort to those in grief.

It's often okay if the wrong words come out to a person suffering intense grief. Though he or she may be most vulnerable to indiscretions of sympathy in the early days of grief, most grieving individuals understand how hard it is for the rest of the world to be truly sympathetic. Most of them have been in your shoes at some point: they tend to cut slack to those who don't know the right things to say. They tend to realize that you are trying your best, in your own way, to be helpful, and will accept the positive feeling behind the message.

So don't struggle with your words. And if no words come out at all - just squeaks, perhaps - a hug or handshake can work wonders.


Sometimes, simple statements are the best. For example: "Margaret, I am so terribly sorry that Jim died, and I already miss him like crazy. I am sad for you, for the pain you may be feeling."

Short, direct statements of support may be the easiest to swallow for those overwhelmed by loss and grief. Reflections on spirituality and philosophy may be too challenging and should be avoided until such time as the grieving person expresses an interest in these topics.

Basic statements expressing sorrow for the loss, accepting the grieving person's sorrow, and offering support can be soothing.

Speak from the heart. A spontaneous expression of your own feelings, simply put, can provide genuine comfort. This may not seem an easy thing to do; it may seem impossible, especially if you do not share the bereaved person's sorrow over his or her loss.

Here's what to do. Look inside yourself to a time when you experienced a serious loss, and think about what you would have liked people to say to you - if anything. Remember how you felt when your loved one passed away. As you remember the hurt of your own loss, it will allow you - sometimes suddenly - to feel genuine sympathy for the person with whom you are trying to communicate. You won't feel what the sufferer feels, for grieving is unique to each person, but the sense of loss in general, and the feeling of real sorrow, will help guide you toward authentic expressions of caring support. It will even be reflected in your body language and thus unconsciously - or consciously - communicated to the person in grief.

Do talk about the person who has died, if it seems appropriate. Often, family and friends of the bereaved are reluctant to mention the name of the deceased, either because they are afraid of bumming out the person in grief, or because it inconveniently reminds the person offering sympathy of his or her own mortality. But often, those who have lost a family member adore talking about them, and it hurts when their family and friends will not.

If the grieving person/family seems able to listen for a moment, consider offering to do whatever you reasonably can to help.

"Sid, Janet is going to watch the kids for you and I'll take care of the lawn."

You may offer support in a variety of ways - buying groceries, walking the dogs, making yourself available at any time for a call - but be prepared to back up what you say. Feel out the situation and try to determine what sort of realistic help to offer and/or provide.

While there are phrases that should be avoided when speaking with those in grief, there are certainly ways of offering sanctuary at that very moment and showing caring support. There are many resources available, not just for the bereaved, but for caregivers and support workers, and the general public.

For more information, and to learn how to offer Sanctuary Anywhere, please visit the Friends Along the Road website.

Sunday, June 13, 2010

What to Say - and Not to Say - to Those in Grief [Extended Version]

People seem fundamentally predisposed to avoid thinking about death and grief. This capacity for denial is especially true in the U.S. and U.K., where death is trivialized through dark humor and considered through the perspective of slasher films - a kind of pornography of death that allows us to symbolically triumph over it for 90 minutes without actually taking it seriously.

In certain Asian, African, and Latin societies, and in Norway, people tend to be less uncomfortable with the idea of death, and more spontaneous and genuine about celebrating the lives of those who have moved on.

Death is our greatest taboo, more so even than sex during the Victorian era.

Most Americans do everything they can to resist consideration of their eventual deaths. This great denial is achieved largely through pleasure-seeking, and includes the endless pursuit of sex, gourmet meals, shopping, video games, watching television, listening to music, texting and tweeting, unending fascination with every aspect of sports, incessant body-building, collecting things, and so on. Every day our culture finds new ways to distract us from the fact that each of us will, at some point, die, and that each of us will lose loved ones.

Our denial of death is a practical defense mechanism. And of course we need to eat, make love, shop, exercise, and so forth. Yet carried to the extreme of Western-style pleasure-pursuit, avoidance of death-awareness cripples our ability to truly live. When we are unable to face the mortifying, inevitable fact of physical death, we are like sleep-walkers following programmed instructions that hinder our abilities to be genuine and effective in times of loss and grief.

When faced with the fact of someone's death, we are often so stunned or horrified that we just don't know what to say to family and friends of the deceased. Sometimes, we find ourselves uttering catchwords such as, "I understand what you are going through," or "Time heals all," or "God had a reason for taking your loved one." These statements are drivel that can do more harm than good.

Sometimes, we are so unbalanced by the situation of someone's grief that we say nothing - words simply won't come, and we find ourselves standing there feeling idiotic. This is not an ideal response to someone's grief, but it is an improvement over trite phrases that might be uttered more for our own convenience than for truly expressing sympathy.

Yes, it can be terribly difficult - scary, even - to consider what to say to those in grief, because this requires taking a serious look at death. It can seem impossible to look death in the face, if one has not experienced the loss of a loved one. Yet there is help: even if you are not ready to confront the fact of your own mortality, and wake up from your denial of death, there are things you can say to those in grief that may be helpful. There are also statements to avoid.

Knowing what to say to those in grief may not help them feel better. When you have just lost the one you lived for, you may find yourself in a different universe, and everything and everyone around you may seem incomprehensibly alien. Yet it could be, too, that your thoughtful actions just might make a positive difference in their lives. Saying the right thing might help you feel better, too.

Certain words and phrases should be avoided when expressing sympathy for those in grief.

Do not say anything that implies limits on the duration or intensity of grief. Grief is not an illness, no matter how many well-meaning but misguided psychiatrists have tried to pathologize it. It is not something that can be treated with triage. There are no bandages for the loss of someone you love.

Grief is its own phenomenon, unique for each experiencer: it is messy, it happens in its own time and space, it can be mild as two weeks of sadness or as intense as disintegration for an eternity in the sun's corona. Grief can last for a lifetime in every moment, at uncharted intensity, and that does not make it any sort of mental illness. For who can speak for another's loss and say just how it should be experienced?

Each person in grief is the true expert on how to grieve. It is perhaps a sacred experience, and the most any of us can do is try to make the sufferer as safe and comfortable as possible, then get out of the way as he or she teaches us what it means to be alive.

Avoid catch phrases such as, "Time heals all." First of all, it sounds contrived, plastic, stated for your own convenience so you can get the hell out of the wake as quickly as possible. Secondly, it is untrue. For example, time does NOT necessarily heal grief - for, as stated above, the bereaved have every right to grieve as long as necessary without having the trip laid on them of "getting over it."

Never say to the bereaved, "I know how you feel." You may think you know how they feel, because you too may have lost a beloved family member or friend, but actually, that was your experience of grief, not theirs. Each person grieves in his or her own way. Don't make the conversation about yourself; keep it focused on their loss, not yours.

I have often heard people say, to me and to others in deep grief, that the death of a loved one "...is God's will." Just about nothing can upset a person in grief more than these words. When we lose those most precious to us, we may wonder why God could possibly allow their deaths. It seems wrong! Cruel! Unacceptable!

The idea that God would "take" someone to satisfy a personal whim is abominable. Whether or not you and/or the bereaved individual are religious, leave the topic of God out of expression of sympathy, unless the bereaved person brings it up; and if that is the case, you are on your own.

"You are doing so well" is another phrase to avoid. Do you live in that person's head or heart? For all you know he or she may look okay but be contemplating suicide. Do not add expectations of "doing well" to those already so burdened with the loss of their loved ones, the funeral arrangements (a dreadful experience), the memorial service, etc., that they are probably feeling like death themselves. Don't push your expectations on them; simply allow them their grief.

Do not say, "Be brave" or "Be strong." Who cares about bravery when faced with such essential questions as, "my child is dead. Should I live or die?"

You might find yourself saying, "Others have lived through it and so can you." This thoughtless statement is possibly dangerous: someone who has just lost his or her beloved child, brother or sister, mother or father, grandparent, or best friend might feel so close to death already that he or she is pushed over the edge by being told they can "get through it."

Maybe that person doesn't want to get through it! Whether or not to continue when confronted by life's worst moments is an entirely personal decision. Hopefully he or she will decide to hold on to life - but this is something with which someone must personally come to terms.

While doctors and nurses are guided by the Hippocratic oath to seek healing for us, "healing" is not something that should be pressed on someone in grief. The pain of deep grief, though unfathomably awful, can be a critical connection to those we have lost. Like Linus with his blanket, we should be able to hold on to our grief as long as we feel necessary, without Lucy trying to bury it.

Healing can be achieved, yes, but only if and when the bereaved is ready, at his or her own pace. A more reasonable alternative path to consider - one which I have chosen - is learning to live with my grief. I have no desire to get over it or "be healed." My grief has changed me like a bath in alchemical fire, and I'll never be the person I was before my daughter's death. Nor do I wish to be. My grief motivates me to keep living so that I may be of service to others in grief. I'll be damned if I'll "get through it" in order to please others.

"Your loved one has lived to a ripe old age. At least she had a long and eventful life!" Yeah, I have heard this one quite often when people are trying to console those in grief. But does the fact that someone had a long life necessarily make the relative's grief any less? Your grandmother may have lived to be 111, but still, she was the one who raised you when your mom and dad ran off, she was your best friend, and she made great sacrifices for you. If she was suffering badly before her death, it is of course fine to be grateful that she is now out of pain, but one shouldn't try to dredge sympathetic meaning out of the fact that someone died at an old age. That person is gone, and the physical absence hurts.

Avoid talking about "The Stages of Grieving." This lays another huge trip on those in grief. Elizabeth Kubler-Ross never meant for her "stages" theory to be taken so literally in regard to bereavement, later writing that grief happens in its own time and fashion, and cannot always be tied up neatly. There are some great insights in Kubler-Ross' work, but it just isn't appropriate to saddle someone with the expectation that grief occurs in pre-defined stages, with an ultimate outcome of acceptance.

"Grieving is a process" also sounds absurdly cold and mechanical, and leaves no room for unexpected, spontaneous experiences of grief that do not conform to any preset theory, and may be surprisingly essential, somehow, in the way a person learns to live with his or her grief.

A phrase that I find annoying, if not especially inappropriate, is: "You have my condolences." Why does this very common, almost universally accepted phrase, bother me? Because it is an abstraction, one step removed from an actual expression of sympathy. What are condolences? They are a statement that you wish to offer sympathy. So why can't we just say, "I am sorry for your loss," and thereby express sympathy directly? Why hide behind an intention to express sympathy instead of simply stating the sympathy itself? Would we say to someone on their birthday, "I express my intention to wish you a happy birthday"? Of course not. We would simply say, "Happy birthday."

Be assured, however, that there are positive and effective approaches you can take when talking with those in grief..

It's often okay if the wrong words come out at a funeral, memorial service, wake, or at any time to a person suffering intense grief. Though they may be most vulnerable to sympathy faux pas in the early days, months, and years of grief, most grieving individuals understand how hard it is for the rest of the world to be truly sympathetic. Most of them have been in your shoes at some point: they tend to cut slack to those who don't know the right things to say. They tend to realize that you are trying your best, in your own way, to be helpful, and will accept the positive feeling behind the message.

So don't struggle with your words. And if no words come out at all - just squeaks, perhaps - a hug or handshake can work wonders.


Sometimes, simple statements are the best. For example: "Margaret, I am so terribly sorry that Jim died, and I already miss him like crazy. I am sad for you, for the pain you may be feeling."

Short, direct statements of support may be the easiest to swallow for those overwhelmed by loss and grief. Complex ideas may be confusing. Challenging concepts such as spirituality and philosophy should be avoided until such time as the grieving person expresses an interest in them. Early on, heavy thoughts may be too much to process - especially if he or she is so ruined by grief that even getting out of bed, going to the bathroom, dressing, or eating, seem inconceivable.

Probably, the only thoughts a person in the early days of grief can handle are whether to live or die, and wondering how to take care of the family when leaving the bedroom seems out of the question.

I have come across individuals who were so anxious about pressing their own opinions of grieving on me, in the guise of proving me support, that I almost ran away. Once, in a doctor's office, a nurse's aid who had learned of the loss of my daughter instantly turned the conversation around so that it was about herself and the loss of her distant relative. She babbled at a high speed about time-tables, getting over it, and moving on, and I felt trapped with her in the tiny exam room. Her words ran together unintelligibly in my mind. Was she just talking to fill some personal emptiness - to avoid facing the fact of her own impending death?

All I could think about was strangling her to shut her up, as Homer Simpson does to Bart. Had she given me a short and direct statement of sympathy, I wouldn't have had the panic attack.

Basic statements expressing sorrow for the loss, accepting the grieving person's sorrow, and offering support can be soothing.

Speak from the heart. A spontaneous expression of your own feelings, simply put, can provide genuine comfort. This may not seem an easy thing to do; in fact it may seem impossible, especially if you do not share the bereaved person's sorrow over theirhis or her loss.

Here's what to do. Look inside yourself to a time when you experienced a serious loss, and think about what you would have liked people to say to you - if anything. Remember how you felt when your father, mother, sister, brother, grandparent, aunt, uncle, cousin, best friend, favorite teacher, or pet passed away. As you remember the terrible hurt of your own loss, it will allow you - sometimes suddenly - to feel genuine sympathy for the person with whom you are trying to communicate. You won't feel what the sufferer feels, for grieving is unique to each person, but the sense of loss in general, and the feeling of real sorrow, will help guide you toward authentic expressions of caring support. It will even be reflected in your body language and thus unconsciously - or consciously - communicated to the person in grief.

If you can, look the grieving person in the eyes. But don't force your gaze. If the person looks down or away, just realize that the intensity of your sympathy is too overwhelming to deal with at the moment, no matter how genuine and well expressed.

Do talk about the person who has died, if it seems appropriate. Often, family and friends of the bereaved are reluctant to mention the name of the deceased, either because they are afraid of bumming out the person in grief, or because it inconveniently reminds the person offering sympathy of his or her own mortality. But often, those who have lost a family member adore talking about them, and it hurts when their family and friends will not. Silence about a deceased loved one can seem almost as if others have erased that person from their pasts, that a significant life never existed.

If the grieving person/family seems able to listen for a moment, consider offering to do whatever you reasonably can to help.

"Sid, Janet is going to watch the kids for you and I'll take care of the lawn."

You may offer support in a variety of ways - buying groceries, walking the dogs, making yourself available at any time for a call - but be prepared to back up what you say. In some cases it might just be better to do some of these things; Judy and I will always be grateful for the neighbors who appeared out of nowhere during our tragedy and brought food, trimmed the palm trees, and gave us moral support. One large, muscular policeman stopped by just to give me a fierce hug - and we wept in each other's arms! Feel out the situation and try to determine what sort of help to offer and/or provide - or not, depending on how the grieving party are feeling.

While there are phrases that should be avoided when speaking with those in grief, there are certainly ways of offering sanctuary at that very moment and showing caring support. There are many resources available, not just for the bereaved, but for caregivers and support workers, and the general public.

For more information, and to learn how to offer Sanctuary Anywhere, please visit the Friends Along the Road website.

Sunday, June 6, 2010

Living Among Headstones: Spending the Night Alone at Lilli's Grave


Picked up a book at the library called, Living Among Headstones: Life in a Country Cemetery, by Shannon Applegate. It's just my kind of a read. I'll tell you why in a moment. First, here's the inside-cover blurb:

"In 1997, Shannon Applegate was bequeathed a small cemetery in western Oregon. The neglected five acres were not only the burial site for generations of her family but also the resting place for many in the nearby, down-on-its-luck logging town. Living Among Headstones chronicles the author's experiences as sexton of this sacred land: she finds herself plotting gaves, consoling families, and confronting the funeral industry.

"Filled with humor, singular events, pathos, and unexpected smiles - and written in a meditative tone that is beautifully complemented by dozens of photos scattered throughout the text and by lovely watercolors by the author's sister -
Living Among Headstones is more than a memoir of one woman's experience at a rural cemetery; it is an expansive look at how death has been treated through the centuries, and a meditation on how we long for our loved ones to have a continuing place in our world. Ultimately, as the author and we learn, only an understanding of death can give us an appreciation of life."

This appeals to me because I am fascinated by cemeteries, and like the Bud Cort character of the film Harold and Maude, I spend time in them whenever I can. After our daughter Lilli died in 1999, I came to treasure cemeteries as being wondrous places that are not spooky, but are sacred places housing the physical remains of loved ones as well as history, architecture, and beautiful artistic tributes made by family members and friends.

A year or so after Lilli died, Judy and I were traveling around the country on our Looking for Lilli Tour, and when we were in Dillon, Colorado, I had an overwhelming desire to spend the night at Lilli's grave, which is in an idyllic setting in the forest, looking out over Lake Dillon and up to the Gore Range. First, I obtained permission from the local police and the cemetery society, who saw no harm in what I was doing; they realized that I wasn't some morbid weirdo, but that I just needed to be close to Lilli in this way. Also, by letting them know, it spared me being arrested during the night.

The evening was wonderful: clear skies, cool, with a slight breeze that soughed among stones and bushes. I made friends with a fiesty squirrel who at first saw me as competition for the nuts and seeds beside Lilli's headstone. I walked all through the cemetery, reading the inscriptions on just about every stone, and feeling like I was getting to know these people a little. Their families, too. I marveled at the artistic, poetic tributes that no one but family will ever see, because most people are freaked out by cemeteries and can't be paid to go near them. Then I sat at Lilli's grave for hours, playing my wooden recorder, singing impromptu songs to Lilli, talking to her spirit, crying sometimes, laughing sometimes, and even asking any resident spirits to make her feel welcome.

After that I slept.
Ever since, I have enjoyed visiting cemeteries and also looking at those roadside markers alongside highways, where people have been killed. I want to KNOW about these individuals. Each one was unique, with a story.

Lately, with our non-profit Friends Along the Road, we have been tossing around the idea of using corporate funds when they are available to purchase some older cemeteries that the owners may no longer be able to take care of, and sort of fix them up. What's more, some of us in FAR are interested in the natural burial movement, and I would like to find places to have "green" cemeteries.

Death and burial customs from around the world are quite interesting to me, and I am making it an area of special study. I believe, as does author Applegate, that only by coming to terms with death can we really begin to live.


Love, Dave

Saturday, June 5, 2010

Friends Along the Road: Creating Sanctuary for Those in Grief

Like you're in a different universe from everyone else: that's how it can feel after the death of a family member or friend.
How can the world go on as if everything is normal, when this precious, unique individual, is suddenly gone? Especially when you aren’t even sure if you, yourself, wish to live?

These questions confronted Judy and I after Lilli, our 14-year-old daughter, died in November of 1999.

Only four months after we’d moved from our longtime home in Colorado to start new lives in Florida, Lilli was struck by a car and killed instantly. In a way, Judy and I also died that night, and have never been the same—nor will we be. Nor do we wish to be. That is how we came to create our non-profit public charity, Friends Along the Road.

Friends Along the Road—FAR—came into being because Judy and I needed safe places in which to grieve, and couldn’t find any, except for the much-appreciated short-term safe havens created by family, friends, and even strangers, which helped us find our way.

I was in real estate. Judy was working in another professional capacity. But after Lilli died, our hearts just weren’t in our jobs anymore.

Some weeks after Lilli’s funeral, in Dillon, Colorado, we tried to go back to our jobs in Florida but just couldn’t. Things we all take for granted, such as making money, suddenly seemed pointless. Chatter in our workplaces by bosses and other employees was often painful to us, such as how they hated their children and spouses. Or when they joked about people being killed. Or when they ordered us to smile at all times and display no signs of grief.

The Looking for Lilli Tour

Though we had no money, Judy and I set our intention on hitting the road as the Looking for Lilli Tour: to see if we could find reasons to keep living after the death of the one we had lived for. Then, a few months later, we were suddenly blessed with the means to travel—a luxury that most people in grief do not have, because they must work and pay bills and put food on the table. So we bought a fifth-wheel trailer, told our insensitive employers to go to hell, and spent the next two years traveling the back roads of the U.S. and a bit of southern Canada.

With no itinerary and lots of time, we were able to do much soul-searching. Also, we benefited from the kindness and wisdom of family members, friends, and the new friends we made along the way. After a while we came to realize that sometimes, the best thing one can do for those in grief is to make them as safe and comfortable as possible, and get out of their way so they may investigate the mystery of death and bereavement, and form their own ways of living with grief. A sacred endeavor, in my opinion—one that others should never obstruct with their own views on how people should or should not grieve.

Who are Friends Along the Road?

I, Dave Pierce, am President of Friends Along the Road, and Judy Pierce is Secretary. Our other officers and directors are Jan, Barbara, Chris, Sydnei, and Giulia. None of us is a licensed counselor. We, and the FAR organization, do not provide counseling services. We have great respect for grief-counselors and therapists, but are not interested in counseling anyone. We provide a different kind of support.

What is Friends Along the Road?

Friends Along the Road is a Florida 501(c)(3) non-profit public charity registered with the Internal Revenue Service of the Untied States. Our office is in Silverthorne, Colorado. We provide sanctuary and caring support for those grieving the death of family and friends, so that they may have time and places in which to rest, seek consolation or healing, and possibly reevaluate their lives.

Why is Friends Along the Road?

After two years of feeling both subtle and overt pressure from members of our society to “get over it” or “put it behind us and move on” or “be healed,” Judy and I realized that the death of our beloved only child was not something we cared to “move beyond” or “have closure with”—such ideas seemed absurd and hurtful to us, and still do. I realized that, because I am in part the sum of my experiences, to “let go” of the unimaginable pain of losing Lilli would be, in a way, like pretending that she had never existed—and of course quite impossible. In fact, I came to embrace the pain. It transforms me. It is more important to me than any body-part and keeps me alive and awake and aware.

I went from being a happy, money-focused person who always believed his ship would come in to a bittersweet person who wants to make a difference. And I’m fine with that. It is my reason for continuing with life. Same with Judy: she decided that if we are going to live in this world of death, gravity, pain, and occasional joy, we might as well get serious about being here and live with meaning and purpose.

By August, 2002, Judy and I felt good about our vision of supporting people in grief. Together with the fine individuals who served as our original Board of Directors, we started FAR, established a physical as well as an online presence, and, in our spare time, began doing our chosen work. The work of our hearts, minds, and souls.

For 10 years now, FAR has been creating safe places in which people may grieve on their own terms: in person, over the phone, through the mail, and online with a website, a blog, an active Facebook sanctuaries both public and private, and a private message board. The bereaved whom we serve are our friends along the road. We learn a great deal from each one. Every one.

On death and grief

Death and grief are our society’s most taboo subjects, more so than sex was in the Victorian era. While people can joke about death and laugh at grizzly slasher films (a kind of “pornography of death”), most people in places such as the U.S. and some of the other advanced countries are unable to seriously face the subjects for more than a few minutes before freaking out and changing the conversation. It is because many in Western culture deny the fact that each of us will die, and that we will all lose our loved ones. Jokes and slasher films are ways of psychologically “triumphing” over death without having to actually consider it; they are tools of the denial. As are pleasure-pursuits such as TV, video games, and a constant focus on eating, sex, and sports-trivia. Anything to distract the mind from death.

Not so much the case in the Latin countries, such as Mexico, Spain, and Italy, where extended periods of mourning are the norm, and there is less pressure from society to “process” the grief and get back to work. Norwegians, too, tend to be much more understanding about aspects of death and grief, as are those in some third-world countries. Some villages in Africa and Asia, for example, in which all the inhabitants will stop working for weeks at a time to mourn loved ones with tears, story-telling, song, dancing, and feasts.

The US, and to a lesser extent, the UK, are quick-fix societies in which funerals and wakes usually happen rather quickly, and, after a week or so, the bereaved tend to go back to their jobs. Usually because they have to: they have bills to pay, family members to take care of. Or their jobs require it. Sometimes, though, it is because they “pour themselves into their work.” Which is okay. Many people love their work and find solace in it. However, this is not the case with everyone, and grieving persons shouldn’t have to work simply because others tell them it is the best thing they can do for themselves in their “time of grief.”

Grief is unique for each individual. It is intensely personal. For those who believe in God, facing the fact of losing someone is a matter between themselves and God. For those without religious or spiritual beliefs, the matter is ultimately something they must come to terms with on their own. Each person goes about it in his or her own way.

FAR honors the unique ways in which people experience grief and mourning, and makes safe places in which they may grieve in whatever way they need to.

Sanctuary Anywhere

Grief over the death of a loved one can strike at any time, any place: at home, on the bus, at school, in the grocery, in a restaurant, at church, in a movie theater, on a plane, in prisonanywhere. Regardless of when and where such feelings occur, they are not wrong or inappropriate; they are natural responses to grief, and should be respected.

When someone near you is overcome with the terrible pain of loss and having a hard time functioning, it is possible to create sanctuary by making that person feel as safe and comfortable as possible, and being present to listen, console, and provide resources.

Friends Along the Road practices the idea of Sanctuary Anywhere, and teaches it. We believe that anyone can easily learn the basic skills necessary for improvising zones of safety for any person, anywhere, who is suddenly crippled by the overwhelming emotions and physical symptoms of severe grief. Visit the FAR website at www.friendsalongtheroad.org for details.

FAR Sanctuary for Those in Grief

Bereavement sanctuaries are essential for those who do not have the time, means, or place in which to grieve as they may need to. Safe comfortable places and plenty of time can help them discover ways of coexisting with grief. Creating sanctuary on a physical site, and demonstrating that situations of caring support can be created by anyone, most anywhere, is an important part of what Friends Along the Road is all about.

Judy and I, as well as the other FAR Directors and Officers, and the many friends of FAR, intend to create working models of this ideal. The first physical FAR Sanctuary, and others to follow, will be a place in which those in grief may stay and, possibly, come to live, in a safe, friendly environment in which they simply grieve, in whatever ways work best for them.

FAR Sanctuaries will be designed with the awareness that guests may desire to carefully re-evaluate their lives. Practical means of facilitating helpful frames of reference will always be available so that they may explore ways of living more resourcefully, and with greater well being.

Sanctuaries will not only provide spaces for rest, recuperation, retreat, and contemplation, but will offer onsite activities in stimulating sociable environment.

Guests may, if they choose, participate in community-building endeavors such as discussions, games, arts and crafts, and the various tasks necessary to maintaining a community: gardening, care of animals, cooking, cleaning, maintaining buildings and equipment, and in certain instances, decision-making. They will be given opportunities to learn skills and develop financial strategies to help support them both during their time at the FAR Sanctuaries and in whatever environments they may later choose to live.

While some guests may decide to join the FAR organization, efforts will be made to ensure that those with families and jobs keep these obligations clearly in mind and do not drop out of society altogether or out of their own personal responsibilities.

Applicants seeking the support and solidarity of FAR Sanctuaries will be screened using criteria that will not discriminate on the basis of age, sex or sexual orientation, race/ethnicity, religion, or income. The criteria for screening will be designed with the help of mental health professionals. Those individuals deemed as possibly suicidal, or otherwise dangerous to themselves or others, will be immediately referred to the appropriate professionals.

FAR Sanctuaries and other bereavement facilities will always have established relationships with licensed healthcare professionals, including one or more physicians, and a referral list of carefully selected professional counseling services.

Relief Fund

FAR also seeks to establish funds to provide relief for those in deep grief. The monetary relief program will be made at such time as the corporation has attained sufficient grants and donations to begin making disbursements. Thereafter, funds will be distributed to preselected individuals or groups, or on an as-needed basis for those in crisis situations.

The FAR Mobile Sanctuary for Those in Grief

In the fall of 2012, Judy and I, and our cat, Honey, will be embarking on a new adventure: the FAR Mobile Sanctuary for Those in grief. We will be setting forth in an RV or camper and traveling slowly from town to town as a kind of old-fashioned medicine show, giving presentations to churches, Rotary clubs, and other organizations, attending events and outdoor festivals, and being a zone of safety in which people may grieve on their own terms.

The Roadside Memorial Project

As the three of us tour about as the FAR Mobile Sanctuary, we will also gather stories of people killed along roadsides and represented by the many colorful crosses, markers, and other memorials that fill our nation’s roads and highways. Each memorial represents a unique individual with a story—but the stories are largely unknown, except by families and friends.

Along our ever-changing route, we will be sending out press-releases and giving media interviews so that families and friends of those memorialized may come forward, if they wish, and tell us about their loved ones. Judy and I will also be collecting the stories of the family and friends in order to find out how they have learned to live with their grief. The stories, as well as my adventures on the road, will be chronicled in a new book: Looking for Lilli: The Roadside Memorial Project.

FAR will be honored to make free online memorials of your loved ones at the FAR Website. Please send us any photos/details of roadside memorials in your family: we have international database for these “descansos” and will put any include as info as you wish to provide about them.

To read more about Friends Along the Road, and our work


FAR Facebook Private Sanctuary:


To read about Lilli, our beloved daughter, go to the Lilli Pierce Memorial Website at www.lillipierce.com. Though the subject matter is sad, the Lilli Website is a happy place!

The Looking for Lilli Tour chronicles the adventures—and misadventures—that Judy and I experienced during our two years of traveling around the country looking for reasons to keep on living at www.lillipierce.com/lfl1.htm .

How to Contact Friends Along the Road

Judy and I, and the directors and officers of FAR, are not licensed counselors, nor do we, or FAR, provide licensed counseling services. We have great respect for grief-counselors, and, after having read excellent college manuals and popular books on the subject, and interacted informally with many counselors and therapists, have found that such work is worthy and filled with caring, genuinely helpful individuals. But Judy and I are not interested in counseling anyone. We listen, offer sanctuary, and have helpful resources at hand.

If you would like to talk with us about loved ones who have died, or your experiences of grief from death of a loved one and other causes, we will do our best to listen.

Phone (toll-free): 877-532-4453

Email: friends@friendsalongtheroad.org

Mailing address: Friends Along the Road, P.O. Box 3003,
     Silverthorne, CO 80498

How you can help

You can help make the FAR Sanctuary, the Relief Fund, and the Roadside Memorial Project possible.

Friends Along the Road is funded entirely by donations and grants. If you would like to make a tax-deductible contribution, please contact us. FAR needs help in any way you can provide it: monetary gifts, volunteer time, Sanctuary land, Sanctuary items....

Got a camper or RV sitting around on your lot gathering tumbleweeds? Give it to FAR, and write it off your taxes!

To show our appreciation for your support of the physical Sanctuary, the Relief Fund, the Mobile Sanctuary, or the Roadside Memorial Project, your name will be added to our website, and your company will get a free ad.

To make a donation to FAR, You may make a check or money-order payable to:

Friends Along the Road, P.O. Box 3003, Silverthorne, CO 80498

PayPal Donation Page: www.friendsalongtheroad.donate.htm

As Lilli told me in a dream after her death, as we climbed the verticle rock wall of a cliff: “Dad, we are all in this together.”

Thank you for being our friends along the road.

Love,

Dave Pierce,
Friends Along the Road